It will be 4 years this coming March since I’ve been on Ilaris (canakinumab), which is a biologic drug to help calm my immune system and to reduce the intensity of the FMF symptoms (fevers, joint pain, nausea, rashes…). Although it causes me to be immuno-compromised, the fact that I feel marginally better than without it is worth the risk.
I was one of the first patients in Canada to receive the drug. It was officially approved by Health Canada in January 2017 and I got my first dose in March 2017. The price tag of Ilaris is no joke…
Read moreSo here’s the first look into my crazy story...
As a child I always felt different. Always felt I couldn’t keep up with the others. That I couldn’t match my brother, cousins, friends... I just didn’t have the energy, that’s how I explained it to my toddler self. No one really knew anything was wrong, including myself…
My current battle is to step into raw authenticity and own who I am, completely, not be ashamed. Launching this, is a step in that direction. I’m grateful for you reading and allowing me to grow and be better for myself and others.
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